ROOM AIR!!!!!!

Look Mommy I don't need my cannula!


Dear Friends and Family,
I wanted to send a quick update to let you know we took Reagan off her cannula today and so far she is doing great. Wow! I didn't believe this day would ever come. My emotions are going wild today I am so excited with Reagans progress. God has been so good to us and we continue to be amazed at His healing of Reagan. We are learning to never doubt the ultimate healer, with God all things are possible!!
Well, little "piggy" is weighing in at 4 pounds and 14 ounces. She is packing on the weight and getting quite chunky. She loves to eat and takes about 55mls every three hours (60 mls is 2 ounces). Her reflux has improved by leaps and bounds but she does still have the occasional spitting and choking episodes. Now that she is off the cannula we will try her off the wedge pillow, if she does well for 7 days without any episodes she can come home!!! We are getting so close the anticipation is building and we realize we need to start getting things ready at home. While she could be home as early as a week from today I am planning on two weeks. God is Good!
We only had the phone camera today but I will post new pictures of porky soon and pictures from our benefit. Thanks to everyone for the overwhelming support this weekend. We can not begin to thank each of you personally for your giving so we are sending out a HUGE thank you to all. You each have blessed us so much through your givings, support and most of all prayer. We know Reagans story could be completely different if it wasn't for the power of prayer so thank you so much for your faithfulness. The benefit raised more money than we ever expected and we feel so blessed! Thanks again to everyone and look for a post coming soon with pictures and more benefit details.
We love you guys! GOD BLESS!
Amy, Robert and Reagan

3 month pictures

Dana and Taylor come to visit Reagan before going home.


Taylor tells Reagan bye. We miss you guys!!


The NICU twins


The proud Papa's


Our family photo


Mommy and Reagan make goofy faces together.


Aunt Debbie snuggles with Reagan while working. How lucky is she?!?!


Resting peacefully with daddy.

Dear Family and Friends,
Reagan continues to gain strength each day and is growing like a weed. She weighs 4 pounds and 6 ounces today. She loves her bottle and is taking an ounce every three hours. We are adding thickener to her milk to help with reflux. So far this seems to really be helping. She is still on the nasal cannula but if continues to eat well we will start weaning her off this too. She did have one ugly episode tonight while I was feeding her where she refluxed and decided to stop breathing again. This is always scary to watch happen and reminds me how I have no control of the situation. I am continuing to trust God to protect my little girl as that is all any of us can do. I know He has great plans for Reagan and can not wait to watch them unfold. Please continue to keep Reagan in your prayers that the reflux will go away and we can feel safe to bring her home. Thanks for all your support!
Love,
Amy, Robert, and Reagan

4 pounds! YEA!!!!!

Dear Friends and Family,
Reagan reached her 4 pound mark yesterday. She continues to gain each day. We are so proud of her. It is hard to believe at 4 pounds you can have fat rolls but Reagan has some chunky thighs and a double chin. She continues to get cuter every day. The doctors are letting me bottle feed Reagan again. She is loving this and takes her one ounce in about 15 min. As long as the strider does not return we can start weaning her oxygen flow. She remains on 21%(room air)! Way to go Reagan.
We still are having problems with reflux and are back on the wedge but so far not as many drops in heart rate and oxygen. Our hope is that Reagan will be able to come home mid June. We are continuing to trust God to bring our little girl home soon.
Someone asked about the Doctors expectations once Reagan comes home. While no one knows what the future holds we hope Reagan will make a full recovery. She is given till the age of 2 years to developmentally catch up to her age. She may progress quicker or longer; time will tell. Right now there are no physical signs to think less than the best so that is what our hopes and prayers are. God has been so good to us and we know how blessed we are. Reagans future is in His hands!
We will continue to update and post more pictures soon. As always thanks for the prayers and support!
Love,
Amy, Robert and Reagan

12 weeks and 1 day old today!

Dear Friends,
Thank you all so much for your continued prayers and support during Reagan's stay at the hospital. I am sorry for not writing as much lately, but have been just trying to get caught up on all the work that I need to get done. Reagan is doing awesome and I am thankful that God has brought us to this place where we can take a little breather to get caught up on other things. Lately, Amy has spent a lot more time at the hospital and I have been spending more time working in between visits with Reagan. My visits with her are a great experience, truly a blessing, and I just love that little girl so very much. I am proud of her mommy as well! She has really been stoic through this entire process and I am glad that I am married to her:) Most of all, I would like to take a minute to recognize the most deserving of all, Jesus Christ, for what He has done in Reagan's life. I do not take for granted the miracle that God has done in the life of our family and I am so thankful for the closeness we have felt during this time. We still have a ways to go, but I believe that God will continue to take care of us as He has and that He will give us what we need for each day! I firmly believe that God has covered Reagan (and us) with His mighty hand over the last 3 months and that He will continue to do so for the duration. I love you all and am grateful for your kindness and prayers! On another quick note...
Please continue to pray for Reagan's friend, Taylor Lilly. It looks like Taylor will get to head home tomorrow and we are so grateful for all that the Lord has brought her through. She is a precious little girl and it has been a blessing to have her and her family with us for the past few weeks. We are extremely excited (although we will miss seeing her precious little face in the room next to Reagan)that she is going home with her mommy and daddy and we look forward to Reagan building a strong friendship with her, Addison, Molly and all of the other little ones in our church as they grow bigger (boys too, as long as they know they can't date until they are 25). These children can change the world! I just thought of the song that goes "Jesus loves the little children, all the children of the world, red and yellow black and white, they are precious in His sight, Jesus loves the little children of the world!" Taylor, you are loved more than you could ever know! May God bless Taylor, her family, and extended family as she grows! Amy and I love you all very much!

Love,

Robert, Amy, and Reagan

36 weeks today!

I can't believe Reagan is 36 weeks gestational age now. She is growing like a weed. She is hanging out at the 3 pound 6 ounce mark this week but I am sure she will have another big growth spurt soon. Reagan still has periodic strider but it had improved so we cancelled the visit with the throat specialist today. If it worsens we will schedule it again.
Good news today. Reagan's 36 week cranial ultrasound came back normal so no head bleeds. This is such a miracle considering how small Reagan was so we are counting our blessings! Thank you God!! Now we just wait and see who's brain she got Roberts or mine! Hopefully she takes after her daddy, I know her teachers will appreciate it.
Reagan's friend Taylor has a blog if you would like to receive her updates you can click on her name at the top or go to www.taylorjordanlilly.blogspot.com I know they would appreciate your comments as well.
As always thanks for the prayers and will update again soon.
Much Love,
Amy, Robert, and Reagan


I still love my pacy!


Look mom I can whistle.


Thanks for the swing Aunt Holly and Uncle David! I love it!!


Mom says this is my boy outfit but I love the frog feet!!


Not bath time again!

Quick Update

Hey Everybody!
Good News! Reagans eyes have improved and we do not have to go to Chapel Hill. All I can say is there is power in prayer. Thanks everyone for continuing to pray for Reagan. The doctor said he does not forsee surgery at all for Reagan and will recheck her progress in two weeks. I am so thankful we do not have to make another road trip!!!!
Reagan is still having periodic episodes of stridor so the Ear, Nose and Throat doctor is comming to evaluate her tommorrow. Pray that her stridor will resolve quickly and we can get back to bottle feeding soon. Reagan is staying at 21% (room air) on her nasal cannula and not having any episodes so this is a big step in the right direction.
I think Reagan is getting a little spoiled and board with being in her crib so we took her swing in today. She seems to really enjoy it; it's a nice break from her wedge pillow.
Thanks for all your love and support! God is good!
Love,
Amy, Robert and Reagan

Grandparents Day to Visit

I love my Nana!!!


I am still number 1 Papa!


Meme and Papa came to visit! Oh boy I am so excited!


In true Winslow fashion Meme and Papa compare me to a 5 dollar bill.


Kristie my nurse says I don't burp I belch. I wonder who I take after?!?!


Daddy feeds me for the first time and I took my entire bottle!


Oh boy what a big yawn!


Is picture time over yet?


I'm out of here!

Reagan continues to ride the NICU roller coaster. She started taking her bottle every feed yesterday but then developed strider. The strider is caused by edema in the throat which they think is caused by her reflux. To make a long story short we went back to continuous feeds, increased her nasal cannula to 1 liter, and are giving dexamethosone to reduce the swelling. This mornings report is we no longer hear the strider!!! Hopefully we can start bottle feeding again shortly.
Reagan weight is 3 pounds 6 ounces! Way to go Reagan. Please continue to pray for her eye exam tomorrow.
Thanks for all the prayer and support!
Love,
Amy, Robert and Reagan