Work Shower Pictures

Thank you NICU staff for the wonderful baby shower. Reagan and I had a blast at our first party together. Thanks for the wonderful unit gift. The pack-n-play is set up and ready for Reagan and the gift card will be so useful. The support I have received from my co-workers has been overwhelming, I appreciate each of you so much. I can not express the relief I have felt knowing you all have been watching out for "Princess Reagan" (named by the NICU). Everyone has given such wonderful care to Reagan. Bed 9 will always be a special place in my heart! Thanks again!!
Love,
Amy

Home Tomorrow!!!!!!

Dear Friends and Family,
Well the doctors rounded on Reagan this morning and said they are sending her home tomorrow! What and exciting day! It has been a very long road but we made it thanks to God and all the wonderful medical staff. We feel so blessed with Reagans progress. She has gone 8 days with no episodes and is eating like a piggy. We are 5 pounds 12 ounces and 17 1/2" long. Reagan is coming home with a heart monitor and oxygen standby for moms security/sanity. I will continue to keep you posted with her progress and as soon as my computer works post more pictures. Thank you everyone for your constant prayers. Reagan is proof that God hears and answers! Well I must run and get things ready for Reagan to come home!!!!!
Love,
Amy, Robert and Reagan

Reagans Due Date- June 19th

Aunt "T" comes to visit and I got lots of hugs and kisses!


Please not another picture


Hi Everyone!


Daddy's Little Princess-Yea Right!!!


Happy Fathers Day- I love you DADDY!


Are you done yet? This is getting boring!


TEMPER! TEMPER!!


Mommy's little girl


Reagan Update:
Well tomorrow will start countdown #4. So far the longest Reagan has gone without episodes is 3 days. First she decided her food wasn't thick enough, then she didn't like her iron, today she decided she didn't like her eye exam, so we will see what Reagan decides to do tomorrow. While this is starting to get frustrating I try to remember how far we have come and overall how wonderful she is doing. I have seen many babies that have suffered a lot worse than Reagan and am so thankful for the progress Reagans made. Reagan passed her car seat test, hearing screen, and the doctor said her eyes are looking better each check up. This is all good news and I am trying to focus on the positive and not how long we have been in the hospital (106 days but who's counting). Please continue to pray for Reagan. We are so close to coming home just not there yet. Also please pray for Robert. He is not feeling well this week with congestion, fever, etc... Please pray he will get the rest he needs and a full recovery before Reagan comes home. He is staying away from Reagan for her protection so pray we don't pass this on to her. We love you guys and as always thanks so much for all the support.
Sincerely,
Amy, Robert and Reagan

Happy Fathers Day

Dear Friends and Family,
First of all Happy Fathers Day to all you wonderful dads. Reagan especially is lucky today to have a fabulous father and two super Papa's (great Uncles too). There is nothing more touching to me than the relationship between a father and daughter. I am so looking forward to watching this relationship develop between Reagan and her daddy as my relationship is with my daddy. A loving father portrays the relationship we can have with our heavenly father and there is nothing more important. Dad thanks for showing this to me. Robert I know you will do an awesome job teaching Reagan many of life's valuable lessons and loving her the way God teaches. Thanks Ed for raising a wonderful son for me to start a family with. I could not have chosen more wonderful men to be in Reagan's life than the ones she has. So Happy Fathers Day Dads, I hope your day is special!!!

Reagan Update:
Unfortunately, we are still on day 1 of our 7 day countdown. Reagan has been having problems choking when she eats. We are now adding extra thickener to her feeds so please pray this will stop the episodes and we can continue on our countdown. All of her episodes are when she is eating so we at least know what the problems is. While disappointing I am trying to trust that God has a purpose in even this. We will bring Reagan home soon, of this I am certain. Please continue to keep Reagan in your prayers. Reagan has lost a little weight and is back to 5 pounds 3 ounces but I am sure she will be packing on the weight again soon!

Love,
Amy

The seven day countdown begins

"Ride for Reagan" Thank you bikers for showing your support for Reagan! Thanks Jeff for taking the time to organize the ride. We are overwhelmed by everyone's support. (Still waiting for benefit pictures)
Dear Friends and Family,
Well "Porky" is weighing in at 5 pounds 5 ounces today. She is growing so fast it's amazing. She came off her wedge pillow today. They want her to go four days off her wedge without any episodes, and 7 days off the cannula. We finished day 1!!! I am trying not to get my hopes up because I have seen how many times countdowns restart but it is hard not to. I am so grateful we made it to the countdown phase. We will be home before you know it. Reagan passed her hearing screen today. YEA!! We have not had any other big changes just waiting for day 7. Thanks for all your support. We are so blessed to have friends like you!!! May God bless. We hope you have a fun, relaxing weekend with your families!
Love, Amy, Robert and Reagan

Reagan at 39 Weeks

ROOM AIR!!!!!!

Look Mommy I don't need my cannula!


Dear Friends and Family,
I wanted to send a quick update to let you know we took Reagan off her cannula today and so far she is doing great. Wow! I didn't believe this day would ever come. My emotions are going wild today I am so excited with Reagans progress. God has been so good to us and we continue to be amazed at His healing of Reagan. We are learning to never doubt the ultimate healer, with God all things are possible!!
Well, little "piggy" is weighing in at 4 pounds and 14 ounces. She is packing on the weight and getting quite chunky. She loves to eat and takes about 55mls every three hours (60 mls is 2 ounces). Her reflux has improved by leaps and bounds but she does still have the occasional spitting and choking episodes. Now that she is off the cannula we will try her off the wedge pillow, if she does well for 7 days without any episodes she can come home!!! We are getting so close the anticipation is building and we realize we need to start getting things ready at home. While she could be home as early as a week from today I am planning on two weeks. God is Good!
We only had the phone camera today but I will post new pictures of porky soon and pictures from our benefit. Thanks to everyone for the overwhelming support this weekend. We can not begin to thank each of you personally for your giving so we are sending out a HUGE thank you to all. You each have blessed us so much through your givings, support and most of all prayer. We know Reagans story could be completely different if it wasn't for the power of prayer so thank you so much for your faithfulness. The benefit raised more money than we ever expected and we feel so blessed! Thanks again to everyone and look for a post coming soon with pictures and more benefit details.
We love you guys! GOD BLESS!
Amy, Robert and Reagan

3 month pictures

Dana and Taylor come to visit Reagan before going home.


Taylor tells Reagan bye. We miss you guys!!


The NICU twins


The proud Papa's


Our family photo


Mommy and Reagan make goofy faces together.


Aunt Debbie snuggles with Reagan while working. How lucky is she?!?!


Resting peacefully with daddy.

Dear Family and Friends,
Reagan continues to gain strength each day and is growing like a weed. She weighs 4 pounds and 6 ounces today. She loves her bottle and is taking an ounce every three hours. We are adding thickener to her milk to help with reflux. So far this seems to really be helping. She is still on the nasal cannula but if continues to eat well we will start weaning her off this too. She did have one ugly episode tonight while I was feeding her where she refluxed and decided to stop breathing again. This is always scary to watch happen and reminds me how I have no control of the situation. I am continuing to trust God to protect my little girl as that is all any of us can do. I know He has great plans for Reagan and can not wait to watch them unfold. Please continue to keep Reagan in your prayers that the reflux will go away and we can feel safe to bring her home. Thanks for all your support!
Love,
Amy, Robert, and Reagan